Resources and Links
General
Alberta Centre for Child, Family & Community Research
American Academy of Pediatrics: Developmental and behavioural screening resources.
Association for Science in Autism Treatment
AUTISM A.L.A.R.M. Factsheet: Developed collaboratively by the American Academy of Pediatrics, Medical Home Initiatives, Center for Disease Control and Prevention, U.S. Department of Health and Human Services, and First Signs, Inc., helps primary care physicians to identify and refer children at risk for autism.
Autism Around the Globe is an interactive web-based project which focuses on raising public awareness of how autism affects those in different parts of the world.
Autism: Do Environmental Factors Play a Role in Causation? Ted Schettler MD, MPH, Science Director, Science and Environmental Health Networ,k June 2004.
The Autism Genome Project: Investigating the Genetic Basis of Autism
The Autism Research Center: The ARC is situated within the School of Clinical Medicine in the Department of Psychiatry, Section of Developmental Psychiatry, at the University of Cambridge. It brings together scientists working on autism from around the University of Cambridge and the Clinical School. It also has major collaborations with other universities, and works closely with clinical and advocacy services. The ARC has over 30 research scientists and support staff, drawn from a range of disciplines (cognitive neuroscience, psychiatry, paediatrics, neonatology, genetics, and biochemistry).
Autism Research Institute (ARI): ARI conducts research and disseminates information as to the causes of autism and methods of preventing and treating it. ARI makes available packages of advice on all aspects of autism, diagnostic criteria and various treatments and therapies. Visit the Autism Research Institute Conference website.
Autism Research Training Program.
Autism Speaks: A foundation dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. Read Autism Speaks newsletter: e-Speaks
Autism Spectrum Disorders - Canadian American Research Consortium (ASD-CARC): The ASD-CARC Team is a group of more than 60 researchers, clinicians and parents from across Canada and the U.S. that have come together to form a multidisciplinary Autism Spectrum Disorders Canadian-American Research Consortium (ASD-CARC), headed by Jeanette J.A. Holden, PhD, from Queen's University.
Canadian Autism Intervention Research Network (CAIRN) [ENG] [FRE]
Canadian Institutes of Health Research (CIHR)
Canadian Neurological Sciences Federation
Canadian Psychiatric Research Foundation (CPRF)
CanChild Centre for Childhood Disability Research: Located at McMaster University, Hamilton, ON, CanChild is a multidisciplinary research group researching and disseminating information on childhood disabilities, with the goal of improving care and services to children with disabilities and their families. The group also encourages and supports the development of new researchers in the
field.
Center for Disease Control (CDC): Autism Information Centre (includes NIH information)
Cepmed, Canadian Centre of Excellence in Personalized Medicine – 5000 rue Belanger Est., Montreal Quebec, H1T 1C8.
Cochrane Child Health Field: The mission of the Child Health Field is to ensure that children and adolescents receive effective interventions for the best health outcomes based on up-to-date evidence. Denise Thomson, MA, MBA, Administrator. Office located at: Alberta Research Centre for Child Health Evidence (ARCHE), Department of Pediatrics, University of Alberta Room 9419, 4th Floor, Aberhart Centre One, 11402 University Ave NW, Edmonton AB T6G 2J3 CANADA, Tel: 1.780.492.8266 | Fax: 1.780.407.6435, email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it | Evidence-Based Child Health: A Cochrane Review Journal.
Cognitive Strengths in Autism: Neurodiversity.com resource page.
Early Autism Risk Longitudinal Investigation (EARLI). A network of research sites that will enroll and follow 1,200 mothers of children with autism at the start of another pregnancy and document the newborn child’s development through three years of age.
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Fragile X Research Foundation of Canada
From Microscope to Stethoscope 2008 lectures: Autism demystified. Dr. E. Fombonn, McGill University Health Centre.
Global Autism Collaboration: Provides information to parents and professionals and reports research on therapeutic applications. Includes an overview of autism, accounts of subgroups and related disorders, issues, interventions, Temple Grandin's experience and advice, a sibling center, interviews and links to other Internet resources.
Global Plan of Action for Children's Health and the Environment
The International Society for Autism Research (INSAR) is a scientific and professional organization devoted to advancing knowledge about autism spectrum disorders (ASDs), including autism, Apserger syndrome and Pervasive Developmental Disorders Not Otherwise Specified (PDD NOS).
Institute for Functional Medicine
Intute: Provides free access to hand-selected and evaluated Internet resources for students, lecturers, researchers and practitioners in the Health and Life Sciences. [Intute was closed in July 2011, but web resources will be continue to be available for up to three years.]
Johns Hopkins Neurology and Neurosurgery
Kilee Patchell-Evans Autism Research Group, Departments of Psychology and Psychiatry (Division of Developmental Disabilities), Schulich School of Medicine and Dentistry, University of Western Ontario, London, Ontario, Canada, N6A 5C2
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Manitoba Institute of Child Health: The Manitoba Institute of Child Health fosters research for children and youth and the development and application of treatments and cures.
Michael Smith Foundation For Health Research
M.I.N.D. (Medical Investigation of Neurodevelopmental Disorders) Institute, The University of California, Davis.
McGill University Health Centre.
POND Network: The Province of Ontario Neurodevelopmental Disorders Network will perform biomedical research studies aimed at understanding ASD, ADHD, OCD, and ID, and will create a clinical trials network that specializes in childhood neurodevelopmental disorders, in order to speed up the development of new and more effective medications and psycho-social interventions.
The Research Institute of the McGill University Health Centre.
The National Autistic Society (U.K.)
National Institute of Mental Health (U.S.) - Autism Page
National Institute on Deafness and Other Communication Disorders Information Clearinghouse
National Dissemination Center for Children with Disabilities (NICHCY)
New York State Office for People with Developmental Disabilities (OPWDD).
The Offord Centre for Child Studies
Ontario Adult Autism Research and Support Network: Focus on adult autism issues, especially in Ontario, Canada.
The Organization for Autism Research (OAR). Focuses on applied research.
Public Health Agency of Canada: Q&A response regarding thimerosal in vaccines and autism
Schafer Autism Report: Includes research, treatment, advocacy, news and a monthly calendar of upcoming autism seminars, conferences and events.
University of Waterloo Centre for Child Studies.
United Mitochondrial Disease Foundation (UMDF): UMDF aims to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
Wiley Online Library: Features over 1,000 journals, major reference works, online books, Current Protocols laboratory manuals, and databases. Many current research articles on autism… (search autism)
Yale School of Medicine Child Study Centre: Autism Program
Prevalence/Epidemiology
Autism Spectrum Disorders Canadian-American Research Consortium (ASD-CARC).
Autism and Developmental Disabilities Monitoring Network (ADDM).
Coleen Boyle Testimony on CDC Activities: At the end of FY 2001, CDC funded 4 Centers of Excellence in Autism and Pervasive Developmental Disabilities Epidemiology.
CDC: Children's Longitudinal Development Study.
The Epidemiology of Autism in California, Byrd, RS, 2002.
iCARE: International Collaboration for Autism Registry Epidemiology.
The Johns Hopkins Center for Autism and Developmental Disabilities Epidemiology (CADDE).
Metropolitan Atlanta Developmental Disabilities Surveillance Program (MADDSP): [Read a summary of the paper about ASD in metropolitan Atlanta] [Read more about MADDSP].
Prevalence of Autism in Brick Township, New Jersey, 1998.
View state-specific IDEA information for children ages 3-5 years.
View state-specific IDEA information for children ages 6-21 years.
The West Virginia Autism Training Center Marshall University.
Autism Research Funding (Canada)
Autism Research Training Program
Canadian Health Services Research Foundation (CHSRF)
Canadian Institutes of Health Research (CIHR)
Canadian Nurses Association - Nursing Research Funds
Canadian Psychiatric Research Foundation.
Centre of Excellence for Children and Adolescents with Special Needs
Craig Foundation: 5885 Spring Garden Road, Halifax, Nova Scotia, B3H 1Y3
International Society for Autism Research.
Natural Sciences and Engineering Research Council of Canada (NSERC)
Ontario Mental Health Research Fund
Scottish Rite Charitable Foundation of Canada
Social Sciences and Humanities Research Council (SSHRC)
Autism Research Funding (U.S.)
Autism Speaks: Grants for Environmental Epidemiology of Autism Projects.
The Doug Flutie Jr. Foundation for Autism: Professional football player Doug Flutie has established a foundation aimed at funding research into autism, and offering financial support to disadvantaged families coping with the high costs of caring for children affected by autism.
Nancy Lurie Marks Family Foundation
Eunice Kennedy Shriver National Institute of Child Health and Human Development
